When I was put on mestinnon in the hosp during a myasthenic crisis it was 60mg x3 daily. I ended up back in the hosp about 4 days later because I was trying to do basic things at home. I hadnt retruned to work yet and had tried a quik trip to the groc store but fell twice so had to go home without buying anything.
At the second visit it was because my breathing had worsened as I ttried to to do a few of these things. The put me on 75mg x 3 and let me go home. I could feel the increased strength. But a couple days later I had gone to Walgreens and was excited that my body was doing so much better yet when I went to check out my mouth had this locked up thing that slurrred my speech. I was also having strong bouts of twitching in my diaphagm when I would sneeze or yawn or lay down. I called the neuro after the slurred speech. He said back to 6omg. But at 60mg I couldnt return to my partitme job so I lost my job. It works better for my breathing than my legs and such. But only in the context of limited activity.
During the winter I get better from the cold and my body starts acting like it needs less mestinon so I had to take less in the winter.
Annie59
Quote:
Originally Posted by shalynn
OK, I know I'm suppose to be taking a certain amount of Mestinon everyday (60 mg 3 x's a day). I'm ramping up and not nearly where my dr wants me to be.
Today, I had a real scary episode. I had been at a women's conference for church for about three hours this morning and was there for three hours last night. I did get a good nights sleep which was a blessing because I know I needed it. Anyway, by the time I got home I was so very weak. I just had to get in bed! I ate a quick lunch first and I was having trouble chewing, but I did finish my meal. By the time got in bed I was having a hard time talking and it was hard to breathe. I just didn't have the energy, I was so weak. It was very scary. I ended up sleeping for about two hours. So I guess what I want to know is would it have helped me if I would have taken more Mestinon at that point?
Thanks for any input. Sorry to be asking so many questions.
Shalynn
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