NeuroTalk Support Groups - View Single Post

Kitt · 11-10-2010, 10:17 AM

This sounds like just about any support group. It sure sounds like my CMT support group. After years and years of going, I have pretty much quit. There is nothing new and some very boring speakers. And some of those speakers do not even pertain to CMT. I can find anything new out on my other reputable sites. There is no cure/treatment for any type of CMT at the present time so nothing much new there. Yes, research is going on.

Don't get me wrong. Group leaders work hard to find speakers, set times and a place to meet, get material out there, etc. There needs to be someone to help them out as they burn out. Some faster than others.

And I personally do not care to drive over 300 miles round trip to just sit and talk. Sorry but I do not. If I'm going to make that trip it really needs to be worthwhile with some expert neurologist who knows CMT and what is going on. Then weather enters into the picture as well. And we can have it big time where I am.

I also do not care to see how people have progressed; myself included. And you see this as the years go by. That alone can make a person feel stressed and anxious. I don't need to see it. I saw enough of that in my mother, her brother and her father.

So for myself, I have chosen not go much anymore. Stress like that is not good for my health. You will have to decide what is best for yourself. I know a doctor in my area advised a gal with MS not to go to an MS support group meeting as it would just bring her down.

I wish you well in whatever you decide .

I hope I didn't overstep here but I believe this pertains to a lot of support groups. And yes, some groups are just all fine. But there are others that are not.