Thread: Celiac Diesase
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Old 11-10-2010, 08:06 PM
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
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This will rule out gluten and both the doc and I thought it might be a good idea to determine the health of my stomach in case I end up on stronger meds for pain down the road.
Absolutely. so very true. Many times an endoscopy isn't done correctly any ways, and they miss the flattened villi. They also do not take enough samples when testing.

Mrs. D is correct about being gluten intolerant without celiac also. I don't know for sure if I am celiac or not, I'm betting I am even though I have double DQ1 genes, subtype 6, which is a gluten intolerant/neuropathy gene. It doesn't matter if I am celiac or not, I absolutely can not have gluten. Gluten also is what caused me to have neuropathy.

So, if the doctor tells you he/she didn't find flattened villi, go gluten free for a few months and see what happens. Gluten free will not hurt you.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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"Thanks for this!" says:
mrsD (11-11-2010), pabb (11-11-2010)