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Grand Magnate
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Join Date: Jan 2008
Location: Illinois
Posts: 3,836
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Grand Magnate
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
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I saw my neuro this morning. We discussed Gilenya. He said of all his patients I was the one he thought of because I have not been able to tolerate the other treatments. I got the feeling that he would be willing to prescribe it if I want to try it. He also mentioned the $4000.00 monthly cost. I told him that I wanted to wait until more people are on it since I tend to have so many reactions to these meds. He agreed and then said he did not really want to prescribe it yet. But then he also cautioned me that I could have a major flare at any time and that I probably really should try something. "It is my job to give you information -- not advise you. But on the other hand, you do appear to be stable. Let's do another MRI in June and talk about it again." He also told me that I do have MS. I was shocked! For some reason, he tells me that during every appointment. Does he have patients that do not believe him??? I really think it is time for him to retire. He spends most of my appointments trying to figure out what my computer chart says and going over my meds.
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