hi

not dx but do think i may have it, as my son was dx 5 years ago, below are a list of my stmtoms if you could please tell me what you think, i would really apprecioate it, i'm struggling to get my gp to listen to the possibilty this could be my problem.

10 years ago had fibroids which led to a hysterectomy at 26 years old.
soon after started having cognitive issues, lack of concentration, mood swings, dizziness.

in the last 5 years it has gone very much down hill.

2005- episodes of
severe sciatica,
extreme face pain,
tingling in legs,
a sensation my legs were not attatched to me,
neck pain ,
headaches.in back of head but also in eye

2006- same as above,
including upper back pain like a burning ache between shoulder blades that would come in waves, usually after doing something like blowing drying my hair, packing shopping into bags.
bending neck causing strange sensation in head, like my head is full.

2007 - current date- all of the above plus numbness and tingling in foot and other various parts, tends to move around.
- numb fingers when weather changes
.- brief hearing loss(a bit like when you get water in the ear),
-skin sensitivity mainly on scalp hurts to touch it.
- random stabbing pains.
-vertigo when going to sitting position when head is flexed down wards
- tight banding feeling around ribs which is not painfull but very uncomforable takes your breath away.
- a few times woke up at night gasping for breath.
-very painful muscle contractions mainly in upper back and legs causes probelms walking
- excess mucus in back of throat that makes me gag
- numbness and tingling in face
-vision focus problems
- sensitvity to bright lights, like those in supermarkets or cars at night-sensivity to noise
- general aches and pains
-sudden episodes of weakness/fatigue, almost like the body just shuts down
-shoulder pain, sometimes i cant lift my arms up as my shoulder muscles are so tight and it streteches across the neck and back.
-excessive sweating
- the feeling i can't breath like i feel i'm not taking enough air in
- body jerks like those when ur about to drop off to sleep, but mine happen in any part of the body not just the leg
- co-ordination problems
- speech issues, words just come out with the wrong pronounciation.
-hoarse voice that comes and goes with no obvious cause

i think thats about it, i have at least one of the above happening every day, my probelm is my gp doesn't listen, up until this year it was all put down to anxiety/depression, then gp dx fibromylgia, then dx chronic fatigue, i have had so many blood tests i feel like a pin cushion, all normal except vit d was a little low but after taking supplements for 4 months this is now ok.

last week my walking, particulay my left leg, the muscles were so tight it kinda of effected the joint movement and my leg was jolting while walking, so off i went back again to gp who said he would get me an mri of the head/neck and spine, however he must have changed his mind when i left cos i got an appoinment thru for a ct scan just of the head, which i am presuming will come back clear, and from what i can gather a ct scan would not pick up cm especially if its just of the head.

thanks for reading any advice or thoughts would be appreciated.