Thread: So discouraged
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Old 11-12-2010, 09:25 PM
invisable invisable is offline
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Join Date: Jul 2010
Posts: 298
10 yr Member
invisable invisable is offline
Member
 
Join Date: Jul 2010
Posts: 298
10 yr Member
Default I understand.......

Quote:
Originally Posted by dahlek View Post
SOO, He's sending you to someone Who MITE! BE glad! Many other docs would just string you along.... get what I'm saying? That is ONE honest doc!
It IS: that your current doc IS concerned, and has no clue what to do for YOU! Ergo, he's sending you to folks HE trusts that MITE have clues and help you. Don't give up yet. Good person! You mite have found your saviour? I am crossing my fingers that it is so.
Having gone thru what you have? Docs and more docs? Tests? and MORE TESTS? and then? What have you got? Maybe something, Ideally something, or the generic inconclusive [get COPIES!!!!!] and learn.
I truly hope that you can and do get 'lucky' with a clear & Simple diagnosis? I truly also hope that you don't get one of the 'uncurables-merely treatables' such as I have in terms of diagnosis.
Keep faith in YOURSELF, and what you say you have/feel, and how it changes. BE consistent and HOPE from me for the best treatment you can get! Do not discount yourself, or let any doc try to do so! Rebut any doc that tries to denigrate who you are or how you feel! Emotions? Well, DUH? Who wouldn't be 'emotional' with this pain? Ask them what planet they are from?
Geesh! Makes me want to take and use my cane as a weapon! I don't, but it's really REEALLY good to THINK about it at times!
Hugs 's - j
exactly how you are feeling, Rose. I have a neuro appointment next week to find out results of my skin biopsy. If he still has no dx. for me, I feel so desperate, I think I am going to tell him to make one up! I know it sounds crazy, but this having symptoms with no dx, can make one crazy!

It seems the more I have to report to my friends/family that again there is nothing found, the more I feel as though they are discounting my symptoms, it is a lonely place to be. Thank goodness for all of you, it is so comforting to be understood.

My extra 300 of Gab. (now taking 1200mg/day), seems to have "kicked" in (took a month). Wiped out about 50% of sensations, but can't help wondering for how long, my orginal dosage was 900, for a year and a half, will I expect I will have to keep adding 300 in another year and a half!?
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