Connie, I don't even know what to say. After all this time, you have no definitive proof of what is wrong with you. I think it might drive me mad.

Have you looked over this site?

http://neuromuscular.wustl.edu/motor.html

Well, a trial of IVIG or plasmapheresis might help rule in or out some conditions.

Have you ever tried going gluten free? Have they tested you for celiac disease? B12 deficiency?

http://www.nlm.nih.gov/medlineplus/e...cle/003294.htm

What if it is a combination of factors? What if it's not one, all-encompassing disease?

I can't remember, what were findings in your brain MRI? Or wasn't one done? Did they ever do a spinal tap?

I think I'm too stressed out to even think tonight. If it is stiffman's syndrome, then they have experimented with a variety of treatments here in the U.S.

I hope you have a great weekend, without too many physical problems. I'm actually looking forward to the snow we are expected to have.


Annie