Connie, As I struggle to deal with all the fear I have I needed to say I hope you can do the IVIG. I cant see any down side unless you cant afford the it. I agree with what AnnieB3 said about it even helping rule in or out things. AS painful as this place is you are in you are fortunate to have a doc that wants to do this expensive treatment.

I thougth this week I was only a few steps away from getting good expensive treatments like that. Yet I get another biased, rotten doc who's words could make me lose the one cheap med that does keep me out of the hosp mestinon. Oh and a passing reference to disease modifying meds but they didnt mean the expensive ones they only meant steroids. I only have medicare and medicaid and have become clear my treatment options are being shaped by that with many of the docs.

I am sad for anyone who has to endure such limbo. Do you have family, firends that can help you during this time? Do you have services in you home to help? I have learned alot about these services so if you have questions send me a one on one message. I am more sure to see it sooner that way. My brain and eyes are worse than ever which makes it hard to even remember where I have posted.

Sending a hug

Annie59