Fiona,
So sorry you are dealing with this.... I'm hoping this is something that will subside after your body completely adjusts to these units.

When you first brought this up, I was asking around about 'spinal fluid pressure' cause I had never heard of this....and someone from the hospital I know said she has dealt with this personally and she has a friend who actually had to have a shunt placed in order to drain excess spinal fluid from her spine into her stomach.

She said It's generally not that big of a deal so hardly gets discussed. Years ago her neurosurgeon discussed with her how we all have a sacral "pump" that keeps the CSF flowing through our spinal cord. He thought that was a problem she was having and it was quite interesting to learn about.

Does any of this lingo sound familiar in your discussions with your Dr?