Desert flower, I am very glad to hear your persective as a daughter. I think this is some of what I needed to hear. I did some therapy last year when I was well enough to get there and drive. He was a chronic illness specialist. About my daughter he mentioned that I should try to avoid discussions of my health when I am with her. I have done this. In fact I find myself worrying about being honest with them about how sick I am. She is tho the daughter who is best at taking on crappy behavior so I sure could use her as a protector right now tho I sure never thoguht I would be needing to say that at 59years old.
I see I forgot to mention that I am her only parent. Their dad died of cancer when he was only 42 and it was a very bad situation. She told me one nite late that she is afraid I am going to die. It is a very pressure loaded situation.
When I posted last nite about this I remembered the nite when my grandson was running around the house and ran his head into the wall gashing it open bad. Oh and I guess it was my birthday tho I didnt remember that. My Juli grabbed him and took him to the kitchen to see how it was but quickly realized she was going into a siezure from the sudden stress. She handed the little one off and sat down. I had just learned a tool that is said to help deescalate a seizure. I went to her and told her this might help and did it. Shortly she said it felt good and to continue. That was the last time I really felt like the kind of mom I used to be.
I miss that.
Annie59
Quote:
Originally Posted by DesertFlower
I am sorry about this situation.
I am feeling bad because I often don't call my mother back when she calls. Sometimes she brings up issues that cause me stress and I can't handle stress at all, so I avoid it. Stress makes my MG symptoms severe like nothing else does. I do explain this to her, but still, I am not a very good daughter, sister or friend at this time. There are many other people in my life that I have stopped talking to.
Maybe there is something you can do that will relieve her stress. I have not figured out a solution for this situation in my life. I miss having friends and family around...but when talking to them causes me to spend a week in bed, I can't justify that, I have two kids to take care of and myself. I wish there was a way to make the stress go away or for me to handle it better.
I wish you the best.
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