Quote:
Originally Posted by Annie59
Desert flower, I am very glad to hear your persective as a daughter. I think this is some of what I needed to hear. I did some therapy last year when I was well enough to get there and drive. He was a chronic illness specialist. About my daughter he mentioned that I should try to avoid discussions of my health when I am with her. I have done this. In fact I find myself worrying about being honest with them about how sick I am. She is tho the daughter who is best at taking on crappy behavior so I sure could use her as a protector right now tho I sure never thoguht I would be needing to say that at 59years old.
I see I forgot to mention that I am her only parent. Their dad died of cancer when he was only 42 and it was a very bad situation. She told me one nite late that she is afraid I am going to die. It is a very pressure loaded situation.
When I posted last nite about this I remembered the nite when my grandson was running around the house and ran his head into the wall gashing it open bad. Oh and I guess it was my birthday tho I didnt remember that. My Juli grabbed him and took him to the kitchen to see how it was but quickly realized she was going into a siezure from the sudden stress. She handed the little one off and sat down. I had just learned a tool that is said to help deescalate a seizure. I went to her and told her this might help and did it. Shortly she said it felt good and to continue. That was the last time I really felt like the kind of mom I used to be.
I miss that.
Annie59
|
I am happy you were able to help your daughter. Your story brought happy tears to my eyes.
This also made me realize that I should find a therapist to help me with stress. I was seeing one before I got MG and he helped so much (I have PTSD). Maybe he will be able to help again with my new situation with MG. I don't have seizures but stress can put me on the floor if I can't quickly get to a chair or my bed. I am finding that I am avoiding more and more people and situations as time goes on.
I also think I will call my mom, maybe she has something to say that will help. I know she wants to help. She told me that she was going to retire this year but had decided to wait just in case I need help financially (which made me feel really bad, even though I know she did this because she cares).
I applied for Social Security Disability last week, after having MG for a year and a half and not figuring out how to work with MG and my stress problems. If I get disability I think this will help me, it will take one stress away, and maybe then I can be able to spend more time with family.
I mostly wanted to say that your post made me realize that I should call my mom more often, I'm going to try...
Thank you.