When THEY think THEY can't handle us and pass us on...well it takes lots of guts for a doc to admit this if even obtusely.
And yes! One does feel like either a hot potato or poison ivy! Maybe w/a bit of H1N1 thrown in?
Ignore all that, just go w/the 'program' whatever it is and if needed? Go out and seek second and third or more opinions elsewhere if needed.
Just stick to the facts? And simply state that: in your mind you KNOW 'something's' going on...and you want to find out as it's getting worse or the like. Admit [VERY BRIEFLY!] that it's scary and sell yourself to get this new doc or docs to WORK for YOU!
Hang in there and go get tests and more tests then even more tests! That's what's needed to get to the roots of your problem. What are tests and doc appointments compared to having a LIFE? Go get tested! Having any to many of the handicaps that PN's can cause? Well, you don't want any more for sure! The more you try now? It's possible that the less damage overall will be done in the long run.
Hugs and hope always! 's - j