Sharon, have you heard of mestinon being used for this? I have myasthenia gravis and take mestinon but it is suspected I have what you have too. There was is a study going on at Mayo Clinic in MN on that. I do find that when I get the odd symptoms of this the mestinon sure can tackle it. It sounds like you have a harder time with it than I do.
Wishing you some gentle hugs. This is a very good place to share. My vision and memory is bad so if you want to talk messge me privately is I miss your posts.
Annie59
Quote:
Originally Posted by shrn004
I was diagnosed with Autonomic Neuropathy in January of this year. I am really looking for some support on this. I have been in so much pain and not able to do much of anything due to an extreme drop of blood pressure that causes me to pass out. I am on so many pain medications and meds to help raise my blood pressure.
I am currently applying for disability because the doctors said I can't work. I am becoming very depressed because of this and just need people to talk to that have similar symptoms to me.
Hope to talk to all of you soon!
Sharon
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