Lori,this is just a suggestion,or maybe you have already gone thru this? When I had a some what same type of problem,however not as bad as your's. I had six weeks of I.V. prednisone infusion's. My neurologist was the one who decided to give this a try.The reason it did not work for me was because no one took my B12 level before I began this! So it did not work for me. Maybe if they would have checked my B12,it might have worked? Hang in there! Love and Peace to you! Breezy55