Sorry to hear about everything you are going through right now !

I understand completely how you feel. I have had RSD since I was 12 years old (now nearly 16). Started in my left leg and has since spread to include both arms. When the RSD spread to my right arm in July 2007, I developed Dystonia and got the spasms you mentioned. My arm was locked into a fist constantly for about 3 months. I got very down and withdrawn ... as if it wasnt enough that I couldn't walk, I now couldn't write, life was so unfair!

I know it is SO hard not to lose hope. Many times I have wanted to give up and still do.

The things that helped me when my arm locked into a fist were getting those stress balls and trying to wrap them under any gaps in my fingers I could find. Around the time I developed Dystonia, our beloved dog passed away so my mum got a puppy. Stroking him gently helped to uncurl my hand. My PTs also tried spliting the hand under general anaesthetic but that proved to be unsucessful.

I did try muscle relaxants also so you might want to look into those. Baclofen helped deal with the cramping pain I got a little though didn't help with the spasm.

I'm not going to lie and say I don't have problems with that hand any more, I do but thankfully it isn't locked into a fist permanently. I know how hard it is trying to stay mobile when things hurt so bad and your limbs dont want to move but try and do whatever exercise you can do. Gradually exercise helped with my hand and lessened the spasms.

I hope things start improving for you soon. If you ever want someone to talk to, i'm here

Alison x