Busy, I can relate to so much of what you said. In particular the pain issue. I think that's what threw my doctors off when they were looking for a diagnosis. So many people think that people with MG don't have pain, but I've heard differently. My GP said pain is a part of it. I've been sick for five years and been to nearly a dozen doctors. I have the typical MG symptoms...weakness (esp with repetitive motion), ptosis, breathing difficulties, trouble chewing and swallowing. I have been diagnosed based on my clinical symptoms and on my response to Mestinon as my blood work was negative.

Keep reading and posting here because everyone really does get what you are going through. Try to pace yourself throughout the day. Use any mobility devices you may have. I have a cane, walker and a wheelchair! My arms are too weak to roll the chair so someone has to do it for me. Thankfully, I don't need to use these things too often.


Shalynn