Junior Member
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Join Date: Aug 2010
Location: Washington DC Area
Posts: 75
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Junior Member
Join Date: Aug 2010
Location: Washington DC Area
Posts: 75
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My Dx is idiopathic polyneuropathy so I don't know the cause or even which peripheral nerves are effected for certain. I've had 2 EMGs, 3 MRIs, a zillion blood tests, a skin biopsy, and an endoscopy. They want to do a skin biopsy again in a year to see if anything has changed assuming my condition shows no change or is worse. I am also begining to have autonotic sympthoms, which imply SFN, but need some testing done for that also. If the weakness in the legs or hands gets worse probably another EMG. With all that, mostly done at Johns Hopkins, I still don't know what is causing the PN.
I guess I'd like to know so there is a chance to slow progression. May not be possible but without knowing the cause there is no chance to effect progression.
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