We know your frustration! thats what is great about this board. It drives me crazy too when each day isnt the same and it is impossible to plan anything. I applaud you for being able to work, especially standing all day. I work from home and its a battle to roll over and turn my laptop on some mornings. This may be time to adjust your meds and it might work out for the better too. I hope you have a great doctor who listens to your needs, if not find a new one. I hope that your body adjusts and levels out right now!
Your in my thoughts
Lori
Quote:
Originally Posted by catra121
Okay...so I've been pretty proud of myself these last few months...working full time, on my feet for long stretches, etc. I felt like I sort of had a balance between the medications, how much I needed to rest, and how far I could push myself. Then...Thursday night...literally just STANDING there...I got one of those instant flares where I went from my normal 6 on the pain scale to an 11. I had a physical flashback to Feb. when I had to hold on to fixtures to make it from one side of the store to the other. It was BAD. I lucked out (if you can call it that) and had the weekend off. I spent it resting and by this morning I was feeling more or less back to normal (meaning 6/7 on the pain scale). But after a full day of work I'm suffering again.
I guess this means that it's time to go back to the doctor and see where to go from here. I'm just so incredibly disheartened to feel like I am back peddling so fast. And it couldn't happen at a worse time. Guess that's just how it goes sometimes...
Just needed to vent a little...get it off my chest...
|