i am still new to this experience and trying to figure this out as well, however a lot of my research and experience is showing that lots of things can impact not just the disease, but also how your body handles the meds. There have been some older threads of people talking about delayed side effects, so that could be the case. Meds can also be impacted very much by caffeine ( like taking more meds), eating foods in the nightshade family ( potatoes, tomatoes, etc..) and by normal hormonal cycles.
Were there any other changes that went along with the different reaction?
hope the side effects have subsided
Quote:
Originally Posted by craftyRCC
How quickly did negative side effects happen for some of you when you first started to take Mestinon?
I started taking 30mg 4x daily a little over two weeks ago. I didn't really experience any problems at all. Felt pretty good overall. Could feel a significant difference in my arms, only some minor improvement in by back and legs!!
On Saturday I awoke with an awful migraine like headache, this is not unusual. I went out for my morning walk, felt my usual fatigue upon my return. Put my legs up to rest... I ended up with such nausea and diarrhea by the end of the day and throughout the night. I felt a little better yesterday, but not quite my "new" Mestinon self. Still felt a bit under the weather today, went to a warehouse store with my sister this morning, by the time we were done I was lucky I could lift my legs to get into the van without help. Lifting my legs to get into cars or upstairs is one of my biggest problems!
Not sure if a should chalk this up to some stupid stomach bug, or if it might be a meication issue.
Thanks for your input,
Rachel
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