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Old 11-16-2010, 12:13 PM
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Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
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My neurologist has actually gotten nicer as he realizes there's not a dang thing he can do for me and my PPMS. We no longer play the get a MRI game, both asking "why." Last time I saw him he said see you in a year unless you need me. We no longer do the every 6 months game. He never takes longer than 12 hours to answer my e-mails, is open to providing me with WC prescription, pain medications, letters for house delivery of mail (My mailbox is 800 feet away down a hilly drive.) He does not say it, but we both know there is nothing he can do but treat problems if they arise. Rebif, Novantrone, generic/compounded fampridine have been tried with no success. Last time I saw him I said it must get hard treating MS people (he is a MS Specialist Neurologist), no one gets better". He cough/laughed and didn't say anything. No PT for me, My job is to use my time well NOW.
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PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
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"Thanks for this!" says:
SallyC (11-16-2010)