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Old 11-16-2010, 12:41 PM
craftyRCC craftyRCC is offline
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Join Date: Sep 2010
Location: Central NJ, USA
Posts: 123
10 yr Member
craftyRCC craftyRCC is offline
Member
 
Join Date: Sep 2010
Location: Central NJ, USA
Posts: 123
10 yr Member
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Shalynn- my neuro started me on 30mg 4x daily, he wants to up the dose slowly, we are going to discuss uping the meds as needed during my visit next week.

suev-I think it must have been a stomach thing, not a side effect from the Mestinon. I've continue with my prescribed dose and have had no other problems. I'm taking it about 5hrs apart, it only seems to last about 3.5 to 4 hrs. Going to take it every 4 hrs. and see if that helps. I also tend to overdo when I have the extra stamina, I know better but some days I just want to make up for what I didn't get to do the day before.

rouguepuppet- great name!! I couldn't agree more, like with any other medical problem, what we eat, hormones and caffiene can all play nasty tricks on our bodies. I also have type 2 diabetes and have lost about 60lbs over the last year and a half, and working hard to keep losing. I want to get down to an even healthier weight in case steroids are needed in the future. I guess between diet, excercise, stress and everything else my system is just a bit out of whack.

Thanks again for all the advice and input,
Rachel
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