Originally Posted by ali12

Hi Lefty,

I was told recently that my blood pressure often goes from being extremely high to extremely low.

I started faiting a few months ago and it got so bad that I was (and still am) collapsing about 20-25 times day. I saw a Neurologist and he diagnosed me with POTS (Postural orthostatic tachycardia syndrome). Its a syndrome that causes you to pass out by lowering the blood supply to your brain. We were told that a lot of people with chronic pain conditions or that are hypermobile may suffer from it.

Unfortunately, I haven't as of yet found something that helps. My Neuro isn't willing to put me on any medications for blood pressure as it isn't low / high all the time and most hospitals over here wont see me until I am 16 (February).

If you ever want to talk, I am here. I know how stressful it is.

Take care,
Alison x