Quote:
Originally Posted by Annie59
Amen to the breathing remark you made.
I had a local neuro attack me visiously and not even examine me standing clear across the room yelling at me. What happened was which I finally got out of him was he thought I had been pissy with my respected and very mild mannered family doc. I remark I made in the morning to staff at the hosp was written up as if my doc didnt come see me I was going to leave the hosp. Wow!! What someone else can do with your words.
What it was was that I had been admitted the day before for change in symptoms and they walked me around causing my breathing to get worse. I was scared and sick and not much sleep. In the morning the kept food away saying I was gonna get tests. Then that changed with no explanation. I was told my doc would see me before he went to his office but I saw the clock get late enough that I knew he hadnt done that. I wanted to go home if no tests were being done as if I am trying to recover I am better at home with my humidifiers for my dry and my comfey bed and couch and privacy. So I asked staff if he was still coming at some point. And I had asked if tests were still planned as I had been bought food. I got alot of I dont know. I finally said in a perfectly nice way that if my doc wasnt gonna do any tests I would like to do home. I could have added more by saying I would be more comfortable there. I wasnt snippy or anything.
The neuro that came to consult was furious that I had told my doc that if he didnt show up I was leaving.........Oh my gosh!! I had to yell back at him as he was yelling at me making me out to be an ogre! I said I love my doc I would never do him such a thing. He was so furious we never really did any exam and even after I told him I hadnt done that he was argumentative. I finally looked him straight in the eyes and yelled "all I want is my life back, my family my job!!" That turned it around. He heard me and believed I wasnt who he had thought. He then suggested that I give up on the university and go to the state capital city or Kansas City for a fresh consult.
Sorry you had this.
Annie59
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Hi 59- I just returned from kansas city - Landon Center for the Aging
where I saw a wonderful MG specialist and thoroughly enjoyed this doctor. He has specialized in MG for over 35 years. Go the the Kansas University Medical center and look up bios on the doctors there at the neurology dept. I have even seen the MS specialist there who has a fantastic bio.
My favorite part was when he said - in your case, it will be necessary to look outside of the box. Hanging around in the box will not get you diagnosed!! Hahah - that was cute. He ran blood tests, sent some off to Mayo, did full emg over entire body (I hate this electrocution test! I refused when at the end they wanted to d the throat area-They were very gracious and respectful and comply with my limitation of "I'VE HAD ENUF FOR ONE DAY!) - rescheduled for MRI of chest (thymus and lungs), single fiber exam-spinal tap-changed some meds and rescheduled for another appt.
I even mentioned why other neuro "had" to send me on to him - due to loss of bladder. He didn't blink an eye that the other neuro had botched the job and simply said "We will look outside the box and will get a diagnosis!"
Whee.
A very productive trip - exhausting but great docs there. I encourage you to look into this area here in kansas.
Good luck!