Well I went to Johns Hopkins today for a follow up with the Pain Treatment Center. The doc is concerned that whatever is going on with my polyneuropathy is a whole lot more complex than origionally thought. He wants me to see a periperal nerve specialist at Hopkins.

OK that is what I wanted back in June. The neuro I saw there was a MS specialist. I was told, by his assistant, that he was going to refer me to one but when my skin biopsy came back negative for SFN he told me it was not indicated. He had given some recommendations to my local neuro for meds and just treat symptoms. Good-Bye. My local neuro referred me to the pain center when she ran out of ideas.

So how many more weeks/months before I get in to see the PN specialist? Who knows. What to do about pain until then? I was told I could use Lyrica again only at a lower dosage. Last time I was on it I became non-functional and I can't even say if it helped or not as I can't remember much about that time.

Guess I'll see if the local neuro has any ideas while I wait some more.

Sorry about the rant. It's been a bad day.