Hi and welcome kizziwizz. (love the name) the health care in the UK is different from USA. If you were here, I would reccomend that you be sent to a new neuro and or an MS center for re evaluation. Since I am struggling to understand Canadian healthcare, I would be in trouble to say I understand UK stuff.

Do you have MS clinics? Can your primary MD send you?
Do you have the right to call any neuro you want and ask to be seen, or must you be sent by your MD? if so, start researching neuros towards a larger city. Close to a hospital. Call the big city hospital if you have to and ask who their head neuro is. Ask if they have an MS clinic. Ask how you go about getting in to see this neuro or clinic.

Keep records! I know your MD says they will keep track for you, but all you need is one missed spinal tap result and you may end up repeating it.

Keep a symptom journal. Make it part of a brief daily diary. Put in if your muscle are stiff, sore, headachy, back ache stuff and what relieves it if anything. Include your fatigue level. Make a grid of 1 to 10 and each day rate yourself. Today fatigue is a 3 and next day is a 2 and next day a 7. This will give a good idea to who sees you what your patterns are. I use a wall calendar with big blocks to write my stuff down. this way its easy to see and remember.

Contact the Multiple Sclerosis society for your area or region. they have a ton of information.

Remember there are a boat load of things that can cause MS style symptoms including the lesions, so be sure you regular MD checks that out. vitamin def, lyme, lupus, and so forth. Tons can be ruled out with blood work. Then they start shifting thru the pile of whats left that cant be proven.

Hang in there.