key damages mite not show up for a while.
Be patient and be persistent! Also? CONSISTENT! Document the hows whats and nots of your 'progress' [or not].... It could be key to the whole thing.
It took me a year to get my first diagnosis-Autoimmune neuopathy, followed shortly by cancer, then autoimmune thyroid ...later a couple of others?
Keep faith in yourself, seek the best testing and treatments you can when you can? Take advantage of second opinions -THEY saved my life, actually. [Besides they're cheap compared to other options] And, never give up!
YOU KNOW that red alert! Bells are going off in your head and body... you've just got to learn to speak better 'doctor diagnostic speak' to get the point across. Read posts of prior folks experiences and see where you can pick up 'tips' and go from there.
I wish I could give you the 'wisest' way to talk to docs? But I gotta tell you, that if you get your doc on his/her 'bad day'? You'll know, and it mite be best to wait till the next time if it's like 3-4 months... if longer? BLURT out ONE or TWO key concerns and try to get those addressed by the neuro or other doc. Often? I feel like each visit is a 'roll of the dice' for both of us! Wish it were different? BUT key is to get DIAGNOSED and ASAP then..? Treated!!!
Good luck and all my hopes for you - 's - j