Camick,
I was T-Boned by a tractor trailer in 83. (back then, NOBODY knew what RSD or TOS was).
It took me 7 LONG years and more than 100 doctors, until finally my chiro had a client with RSD. He got me in immediately to see Dr S, in Philly. Who confirmed the RSD. Of course, now it's full body. (If it's in you, chances are likely it will eventually go that way) sad to say. Dr S also did the 'Arms up / rotate shoulders back test, which you can do at home, and you'll see there is no pulse, and the hand/s turn white from loss of circulation.
He sent me to the Hand center in Philly to see Dr James Hunter. This guy looked at me for a moment and knew I had TOS. To be comfortable, a TOS patient generally will 'settle in' with his arms rotated forward, and hands in lap. (sitting). Raising arms is a no no. As is extended reaching.

Fortunately, I got hold of Dr Schwartzman's report(s), which were intended for trial. Actually, the deposition. His description there, ruled out ANY surgery for me. The possible and probable side effects are worrisome. I was told by Dr S, correctly that my upper musculature, i.e. the muscle that cover my shoulder blades, and surround the Thoracic Outlet, would atrophy. And, so it has happened. Much to my relief!

Things can always be worse. In 98, a woman blew a stop sign, and my head was jammed into the windshield. TBI, four herniations, and more other problems than a stick could be shook at. I've lost two business', two homes, and just about everything I've ever had, worked for and, for lack of understanding, the love of some close people. I've also gained a lot of insight, have many wonderful friends, and a heck of a lot of pain.

My prayers go to your husband and yourself.
Keep in mind, as I do, and we all do, that someone somewhere, has it much worse!

"Nothing ever stays the same, blame your madness on sorrow, BUT, be a happy man!"

Don't rush into ANY surgery. If your husband is muscular, a working man, as opposed to a pencil pusher, this may heal itself. Get some of the good hot packs, and muscle relaxers will be appropriate imho. Ask you doctor. He needs to find comfort wherever it may hide. A Good Neurologist, who knows these things may be well able to treat him, without surgery! (That's my deal). With RSD, we stay away from the knife!

If you or he'd like to talk, PM me, and I'll call or write back!
I have more than 27 years with your husband's exact dx. I know what it is!


Pete
asb