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Originally Posted by LordWood
I was wondering if any other RSD patients that have it internal have had there RSD cause Gastroparesis. I'm having a rough time dealing with this problem as I am forced to work with my PCP doctor and he's tried all he can to help and my current Gastro Doctor I have for my crohns is not really a person I can confide in to help me other then issues with my crohns as he does not believe RSD is real even though my PCP has spoken in person with him about it. My gastroparesis when first diagnosed with it back in 2007 was placed as mild and it wasn't to hard to deal with it was just the idea of learning to adjust. But now its come to the point it feels like a lining of thick cement is in my stomach all the time and my nausea has increased even more on top of it all ready being bad. I've been on almost all the nausea meds out there to which none helped and I've been on Reglan and Erythromycin as well which neither have worked for my gastroparesis. I just keep losing weight and the weight I do have is from the large amounts of liquid I drink each day. I have had the NG tube before and done feedings that way but the liquid just built up in my stomach and made me even worse and even started causing me to have acid reflux. I was on the NJ tube as well but even with that the feedings were not doing as well as they wanted and the tube was making me sick as well. An RSD specialist I saw at the time told me not to have the NJ tube as it would be worthless. Luckily things kinda settled if you would call it that and I was able to get away with just my liquid weight but then within the last few weeks I've been losing a lot more even with drinking and I can't stand this nausea and cement lining. Do any of you suffering from rsd also have gastroparesis?? If so what treatment are you on, I thank you for your time and responses in advance.
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I understand about the nausea, I think I've had it my whole adult life, maybe before, but 4 years ago I was diagnosed with gastroparesis. I couldn't eat any fat, no fiber, no meat unless it was really smushed or chopped or processed. I was the queen of carbs, 4 bites at a time. I taught myself to eat more but learned to limit my meals to about 1 cup of food. And I ate all the time to keep the pain and the nausea at bay. I took something when the nausea got debilitating I took Zofran. I have metabolism issues too. But having said all that, last Oct I wanted to loose some weight, which is difficult for me to do so I asked my dr for something. The overthecounter stuff just doesn't digest fat and I don't eat fat. He gave me Adiphex. First day, first pill, I knew my stomach was different. I went all day without eating and had no pain or nausea. And I was like a tasmanian devil of energy. Ok, that part wore off after a couple of weeks, but I'm still taking it and I haven't had a stomach ache in one year. Which is good because the accident from which I acquired the rsd would have sent me into the nausea pit for good. Now, I must add that I am ADD, and the adiphex is also given for that because it changes your fight or flight response. So my dr concluded that my stomach problems must have all been caused by overstimulation. He ain't gettin' these pills back. It is a wonderful life with no nausea, even though I have rsd in both legs and many memory issues. I don't know if this will help you, but I'm new here and saw your post and wanted to respond. I was taking aciphex for my stomach acid and it really worked well for me.