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Old 11-22-2010, 02:43 AM
ConnieS ConnieS is offline
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Join Date: May 2009
Location: Sunny South
Posts: 210
15 yr Member
ConnieS ConnieS is offline
Member
 
Join Date: May 2009
Location: Sunny South
Posts: 210
15 yr Member
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Thanks for all your concern! Sorry I havent been posting, theres no wireless internet access available in the hospital. =/ After seeing all the doctors, they now think I may have dystonia, and are trying me on the med madopar to see if it works. Don't like this medicine at all due to the side effects. Makes me nauseous, loss of appetite and vomitted when they wanted to increase the dose to 187.5mg. Its supposedly a drug used to treat Parkinson's disease. I've been on it for about one week, and have yet to see any drastic results, except that I do feel that the spasticity seems to have decreased slightly. They've said that they would put me on the drug for 2 months to see if it works. I'm supposed to be able to walk normally without needing my cane if it is dystonia. If I'm not wrong, they think that I have the dopamine responsive dystonia, DRP.

I'm having emg tomorrow and am not quite sure what will that show too. All I know is that if they cant see anything on the emg, I'll be asked to try that med for 2 mths. If after two mths my symptoms still persist and worsen, then my search begins again, for a new condition.

AnnieB3: My brain MRI is fine, no big problems there. My vitamins all seem in place, they've taken a lot of my blood and said the tests were all normal. From what they've gathered from my medical history and how things started, they came up with 3 diagnosis: dystonia, stiffman's, and PLS. Think they're elminating the diseases in this order. I went to the first site you said, I don't quite understand all the medical terms. For the 2nd site, it seems that some doctors cant get a positive babinski, but some doctors said i have bilateral positive babinski. I think it depends on the way the doctors did it. Lol.

Marina: Thanks, though the more I read about Stiffman's, the more I don't think it is Stiffman's. Lol.

Annie59: it seems that I dont need to do the IvIG now, since I'm put on Madopar. Just feel like theres so much medicine in me! Sorry to hear about your journey, hope things work out good for you, and doctor is nicer to you. I only found a good doctor after 2.5 years of searching, and turns out he's the first neurologist in Singapore, also known as the father of neurology. Thereafter, my symptoms were taken more seriously.
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