dear one -


this is a very hard subject
it is what I feel is the worst of reality to me - about this freaking disease...
so keeping this light hearted for those who are yopd -
I will only say - if you are going to the ER and get to the hospital to finally try to say - words when my mouth is frozen -to a sweet nurse trying to help me.
I was sooooooooo hot I was ready to vomit, couldnt hardly move my mouth to speak -my lovely er nurse trying to hear my whisper -trying to relive my pain-
put 3 warm blankets on my frozen with dystonia and akinesia -body ... because she told me - she thought i was trying to tell her I was cold/ ie; -frozen... because she read my lips and saw me say FROZEN. ?



get yourself a PD bracelet or go with a loved one now...