The following link
http://www.fpa-support.org/aboutfp/i...ml#Description has a very vivid description that should get anyone's attention. Read on down to the description area. Print that article and let them all read it.
When I was first diagnosed the very first line I read was :"Considered to be the most painful afliction known to mankind" - it scared the snot out of me to read it, but thankfully mine has not been that bad so far. I have a very long commute to work everyday and I have a copy of this description in my car incase I should ever get stopped by police while I am having an episode. Not sure that it would do any good - but would explain why I can not speak clearly. Unfortunately, some policeman around here are just plain mean and could get physical if you did not "cooperate". I guess this may sound silly, but you just never know.
So sorry to hear that you have been dealt this at such a young age.
Prayers and best wishes for pain relief,
Rhonda