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Old 11-22-2010, 07:05 PM
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
Posts: 744
15 yr Member
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Your only symptoms may have been the neuropathy, and it would take a long time for you to notice that getting better. Little did I know way back then (11 yrs ago or so), when I was diagnosed with carpal tunnel, but that was one of my symptoms of gluten intolerance too. I also had the nasty stomach issues and neurological issues other than neuropathy. I had terrible panic attacks, a touch of agoraphobia, and anticapatory anxiety.

I was gluten free for 4 yrs before I read about B12, that's when I started taking it and greatly slowed the progression of my neuropathy. My neuropathy stabilized somewhat, yet I still was having stomach issues. That's when I found out all grains are bad for me, plus nightshades, and cruciferous veggies. It's been a long road to get where I am and for now, at least my tummy is agreeable most of the time. I still have neuropathy, probably always will.

I am thankful to doctors like Dr. Hadjivassiliou. He is leading the way for others to follow, and follow, I hope they do. I am also thankful for my neuro, Dr. Gudesplatt, he's been great with me, never tells me I am nuts, that means a lot!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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mrsD (11-23-2010)