Originally Posted by lorigood243

I have been on so many mixes of meds of opiates narcotics ect.

the only thing that seems to work on the burning pain is the Fentanyl patch and low does of Methadone. Drs dont feel what we feel, you have to find whats right for you. There are so many additional problems that go with this disorder that its not just about the pain as we all know. I have been fighting this for 5 years with just getting diagnosed 6 months ago. I am mostly bed ridden and just happy to be able to sit here in bed without being in throws of pain.
Lori