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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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Shayna,
Sorry to hear you are still getting the runaround from Biogen! I cannot understand why they would tell you something like that.
My doc is in a 25 bed medical center, not some giant teaching hospital. All it took was a blood draw and the sample to be shipped overnight to the selected lab. It's not rocket science. The office nurse did mine, along with 3 other samples, and they were shipped that day in a cooler with an ice pack.
It appears Biogen still has their head stuck where the sun doesn't shine when it comes to Tysabri patients. You'd think they would have learned after all these years.
It's time to start agitating them again.I have letters and calls going out!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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