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Old 11-23-2010, 12:02 PM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Exclamation Thanks and wishes

While I am NOT thankful to have Parkinson's disease , I AM thankful to have access to good healthcare and have a loving supportive family.

I am thankful that there is terrific research going on. I am not thankful that so few pwp participate in clinical trials and that the process takes so long

I am thankful for the PD orgs that work so hard on my behalf, BUT I am not thankful for their duplication of efforts

My new years wish is that the orgs would work together and divide up the duties based on the strengths of the individual orgs: (original idea from Carey C as best I can remember in general) e.g. PAN continues in its same role with ALL other major orgs supporting them financially; all research money to FOX; NPF takes on the responsibility of setting up community health centers across the US; PDF provides training and information; APDA continues to support its state wide coordinators and offices. The consequences would be less scarce resources wasted on duplicated services and administrative staff, with more money targeted intelligently for research, and better general services provided for PWP.

Happy thanksgiving to all

Jean B
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Jean B

This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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"Thanks for this!" says:
SherylJ (11-25-2010), tulip girl (11-23-2010)