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Old 11-23-2010, 12:23 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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I never had a lot of burning. Maybe the bottoms of my feet, back when I was running and thought it was due to that. I have bone pain, and muscle pain. I feel like I may burst out of my skin....like the inner part of me is too big for the outer part of me. I am numb in spots. I do have a muscle like pain or soft tissue pain. I liken my pain to broken bones...like walking on broken foot bones, or having a broken back bone.

Most of my issues are autonomic, with a whole different kind of pain. I can have severe cramping in my intestines which causes me to pass out. (vasovagal with bm) I never know when this will hit....it can come within hours of my just having had my 'daily' since it is unrelated to this.

I feel like I swallowed a bowling ball. I have esophageal spasms that feel like a 'heart attack'. I have nausea and loss of appetite a lot.

I am dizzy, can lose balance, have visual issues, and sicca.

I have a lot of heart palpitations and shortness of breath, and presyncope.

Needless to say, fatigue with the inability to initiate sleep.

I have restless leg.

As was said, pain is relative. The pain I do feel, is 6 to 8, on a daily basis...it is really a bear to move at all....but this is life....it isn't going to change, so I have to use my days as I see fit and fight this miserable pain. Some days are 'good' relatively speaking....which means I can accomplish something despite pain....other days, are not so good, which means I get nothing done but eat pain pills.

Meds designed to make 'things better' can often make things worse. I must be a good part Neanderthal, since I have a lot of issues with drugs, either side effects or them not working well. For example, Zofran, a widely used and thought to be well tolerated drug for nausea, sent me into 8 hours of hideous chorea like dystonia. (Think restless leg syndrome on steroids!!)

Neuropathy can be burning pain of the extremities, but it can be oh, so much more!
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