Hi CS,
Thanks so much for your reply and words of encouragement. It means so much to be able to correspond with people who truly understand. I'm glad to hear that your symptoms have become less severe over time and hope they keep getting milder. I believe mine will as well - the dizziness has gotten much better so I hope some of these symptoms will too.
I can't thank you enough for suggesting that I ask my neurologist about other possible injuries. I feel odd about saying so, but that idea never occurred to me to do. We/the neurologiest haven't talked about anything but PCS since August and I think I've been in "survival mode" since the accident. I have an appt coming up in a couple weeks - I will ask him then about other possibilities we should be considering. I do have some neck and shoulder issues but keep writing those off to too much time laying down. It will be good to investigate other possibilities further to make sure I'm getting the righ treatement.
Thank you for taking the time to help me. Take care of yourself.
Marilee
Quote:
Originally Posted by Concussed Scientist
Hi Marilee,
I am glad that you are finding the forum helpful but yet sorry that you have felt compelled to join by the fact that you haven't recovered after three months.
I am sure that you are right to treat you injuries as serious. Post-concussion symptoms are really horrible, especially in the first few months after an injury. I do hope that your symptoms become milder in time as indeed my own symptoms have done.
Your general symptoms sound very like post-concussion symptoms with the possible exception of what you asked about specifically, weakness on one side of the body and difficultly walking.
I myself have, like you, been dealing with terrible headaches, unbelievable fatigue, problems with balance, dizziness and disturbed sleep, foggy brain, as you have described.
However, I have not had any weakness or difficulty with the motor function of walking. I have had some minor oddities in walking due, I assume, to balance, in that it has felt at times difficult to walk in a straight line and I have the tendency to drift in one direction. This has now recovered, but in any case was not due to a difficulty in moving my legs.
So, I wonder whether it would be worth asking your neurologist about any injuries that you might have in addition to post-concussion symptoms. I wonder whether you might have experienced something like a mini-stoke or damage to a specific area of the brain, or have a damaged or trapped nerve in your spine or generally something in addition. (I am not a medical doctor, by the way, so I am not qualified to diagnose these conditions.)
I do know, however, that once a doctor has come to the PCS conclusion they may stop looking for other types of injury. In my own case, I have PCS, but I also had injuries to my neck and back which were ignored. I think that my neck injuries were much less serious ultimately than PCS but possibly more easy to treat, so it was a pity not to investigate them at all.
Anyway, if loads of other people with PCS say that they have one-sided weakness then take the above with a pinch of salt, but I haven't had any one-sided weakness. I have had one-sided headaches and pain but nothing on the motor front, to answer your question.
Good luck with finding a pathway to a better place than where you are at the moment. We're routing for you.
CS
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