Originally Posted by loretta

Hi, I was on both neurotin and then changed to lyrica. 3200 mg of neurotin for a long time, and 400 mg of lyrica. They both helped the burn, lyrica more than neurotin. I gained a LOT of weight and asked to be taken off. I'm gradually losing the weight. There are other drugs that help with burn and pain. Cymbalta is one-anti-depressant-I'm on 120 mg. Vicodin-4 pills a day-used to be on 6. Lorazepam really helps, becaue it is an anti-anxiety when calms our system down and helps a lot. I take seroquel and sleep 10 hours a night straight. I take 2 high blood pressure meds. I've had RSD 15 years-full body and internal organ involvement. It's tough, but exercise helps, massage therapy helps, meditation, prayer, music, visualization, puzzles, distractions do help. I just got a camera for a hobby. Playing cards
Hope this helps you. I'm also getting a compounding cream of ketamine, lidocaine, and anti-inflammatories for skin application to help the burning pain.
Welcome to NT, you'll find many caring, informed friends here.Please stay with us. rsdrx.com puzzles list helped me get more informed. Dr. Hooshmand practied RSD for 40 years in Florida-now retired, but still can research on his website. Also RSDSA is the national organization, can put in your zip code to search for support group meetings and also get RSD drs. names. Take care, your friend, loretta