Essentially, do you WANT to know what you're dealing with? or put your head in the sand?
Before after and during my diagnosic processes for an autoimmune neuropathy, I saw SIX different neurologists in different practices. Good thing I live in a large metro area? One doc actually SAID I could NOT have autoimmune neuropathies and being treated because I wasn't in a wheelchair yet! I replied that: Ever occur to you that I wasn't in a 'chair' because I mite have been treated IN TIME? That doc has since been publishing papers that are showing a change in attitude along these lines- mis-diagnosis or under-diagnosis. WOW.
Remember the "FEAR" is worse than the reality for 93% of us. The other %? have their plates full, but with most AI neuropathies, at least we've got our brains! Because we still have brains? USE THEM! I've challenged my docs and I still challenge them! I have to! To not? is to give in and cave in!
GET DIAGNOSED? Then deal with it! I've done that with several other autoimmune diseases since the Neuropathy and it's stood me well.
Like you? I didn't ask for this, but I've got it. I am going to make the best of it all that I can. And I'm still working on it! But? I respect that FEAR, for sure.
IT takes a heap of fortitude, strength and faith to get thru this all, but YOU CAN come thru it speaking in complete sentences. That's why we are here.
Hope and hugs 's Tell us more, we are here! - j