Quote:
Originally Posted by drswami
I saw a number of neurologists, none of whom diagnosed my neuropathy correctly, and it turned out to be fairly standard SFN in feet and arms, so just seeing any neurologist might not be the best way to go. I would recommend a centre that specializes in neuropathy. If you go to the Neuropathy Association website they list a number of centres that specialize in neuropathy.
|
SFN? What's that? I don't see it listed.
The closest neuropathy center is in NYC, not too close. Was hoping there was one in MA.
Any other avenues that make sense?
I've seen on the TOS thread that many get diagnosed by cardiac surgeons.
I just want to waste as little time as possible. God knows I'm going to walk into this neurosurgeon's office and get about 10 minutes of their time...where they don't actually listen to me...and probably recommend an EMG that doesn't detect anything.
I want to walk in there with a list of diagnostic demands. Understanding what you've been through, what would you ask right away? What would you have them do? I feel like I almost need to slap these doctors to wake them up so they will listen and go the extra mile.
KY