Quote:
Originally Posted by daniella
Hi I am sorry about your pain and also left without a dx. It can time to get a dx which I know is frustrating. I was going to also suggest RSD. I have PN and RSD. Some of the symptoms and how you developed this lean to RSD. I am no expert but you may want to read up on that as well. Yes I would see a neurologist. Who is rx the neurontin and what type of specialty sent you for the other tests? The neurosurgeon? I am glad you are feeling benefits from the neurontin.
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Ugh. Just read up on RSD. The one thing that hasn't emerged or doesn't present is any kind of hand symptom. And that seems to be what everyone checks...see if I have cold hands...discoloration...strength issues. Nope. Although, maybe it will progress that way. I have been getting a jolt now and then to the thumb.
I recently got a 3rd opinion from a shoulder specialist at Beth Israel. He's the one who said a) shoulder seems fine, and b) you're symptoms are more nervy. So, he said go neurontin. Thinking back on this, I'm now wondering, "why the heck didn't he refer me to a neurologist?"
As for the other tests:
* MRI Arthogram of shoulder -- ortho sent me.
* Cervical MRI -- Neurosurgeon. This neuro actually indicated that TOS is a possibility, but he didn't think so.
* EMG -- 2nd ortho. Came up clean. (Of course).
* MRI of chest / Lat area -- Clean. Did this because of the burning scap/armpit pain that also seems to extend down below my armpit into my rib area.
So frustrating. What started out as a discomfort or annoyance in the trap area migrated to the posterior shoulder, then midback/armpit, then upper arm, now the elbow.
I need to stop this in its tracks. I feel like I'm at the beginning stages of ONE of these neuropathies based on initial research.
KY