Quote:
Originally Posted by kyoun1e
On orthopedic drs and shoulders, I've now seen three. All three have pretty much stated that I didn't have a significant shoulder situation. Two of the three diagnosed me with a mild case of scapular winging which is interesting since this could be linked to damage to the long thoracic nerve and the de-activation of the serratus anterior muscle. I just visited the shoulder specialist at Beth Israel and he flat out said he doesn't think I need shoulder surgery and that the symptoms are too nervy.
I've been to the neurosurgeon several times. They can't find anything wrong. Hinted at TOS, but didn't think I have it.
So I think I need to see some other people. I've yet to see a neurologist and my this seems like a no-brainer.
I'm now up to 1800mg per day on neurontin. It takes the edge off, but it doesn't completely eliminate my pain nor my fear. It does allow me to continue to do certain activities at the gym, which is good for my emotional well being, but not sure if this is the right thing to do depending on what's really going on. Have yet to get back to work on this. Could be iffy. After each dose, the first couple hours are very fuzzy.
Ugh.
Thanks.
KY
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I think I saw 5 orthos, one physiatrist, and I was given every diagnosis out there, all of which were wrong. Then the last ortho sent me to the neurosurgeon and he came up with the final diagnosis which seems to fit. Maybe seeing a neurologist is your best shot, but go in there armed with the information and see what they say. I would ask them directly if your symptoms match the condition and whether there are any tests to determine if thats the proper diagnosis. I would also take all the records from the previous doctors, especially the test results. I hope you'll post what you find out.