Hi Jiggered,
Welcome to the NT forums. I'm glad you found us. Hopefully you can find out what is causing all your pain and other problems. We all need to have a name for what ails us so it can be treated properly.
Another thought: Have you asked any questions on the Peripheral Neuropathy forum we have here? They may have similar problems as you do. Or come back here or any of our other forums.
http://neurotalk.psychcentral.com/forum20.html
Nice to meet you.

I hope you find answers so you can get to the right type of doctor.