The university just started patient access of medical records. I was given the sheet with my code last visit. I signed up and was able to review the few blood tests the neuro did that had returned. She did mitochondrial tests that she said would take a month. There was one abnormal in the basic ones. I think it was a urea one but not sure. Last days have been alot.

I have had paper copies of many of the doctor reports. Early on I was seen as needing a psych consult when I told the virologist I saw for a second opionoin on the CMV that was locally diagnosed back in 2003. I told him how much water I needed to feel anywhere near normal. He told me to log how much I was drinking. When I saw him again he had this same disregarding look and said he had a few referrals. He wanted me to see someone who was a specialist in somatic disorders. I knew better and never went. That was in 2004.

In 2006 I saw my current internist for the first time and she immediately said about all the water "oh thats sicca!" She treated me respectfully and ordered the consult for the lip biopsy and the blood tests to confirm Sjorgens. That was a big turning point for me as I had been treated 'crazy' around the water thing by at least 5 doctors. It is amazing how many will bias assuming that because I had a trauma in my past that if it isnt easy for them to find it must be part of that. But the really galling thing is that they dont have the balls to sit there and ask me if I had treatment for it. I finally had my former therapist write a letter in support of this issue. That I did the work and that is not the issue. People who dont do the work, dont do the recovery are the ones that are more likely to have somatic health issues.

This university doesnt do well with trauma in a general standpoint. They are not a place to go for treatment if you did have it. A friend shared with me about a year ago that a soldier was seen down there and was having clear flashbacks yet they diagnosed him as malingering and said he was released to go back to the front now that his other injuries were healed. This made me sick.

Annie59