Dear Kelsie

my heart goes out to you dear. i know how frustrating it can be when your family dont understand. the only thing you can do is educate them. print off info from websites to show them what has happened. show them this site so they can see what we go through. i have internal rsd an am mostly in bed. my hubby has to take care of me, all my meals, clean the house...everything. i ave been ill for 5 years and just got diagnosed 5 months ago. so many doctors didnt know what was wrong with me, that my hubby doesnt even believe i have this..but it all fits me. some days i dont believe it but i know i have it.
the hardest thing is , is that we lose our old lives and have to adapt to this new one with a body that has limitations. its a struggle but be patient and educate your family, its the best you can do. dont argue with them, understand that they miss how you use to be.
hugs
Lori