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Old 02-19-2007, 10:16 AM
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hurtsobad73 hurtsobad73 is offline
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Join Date: Jan 2007
Location: NC
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15 yr Member
hurtsobad73 hurtsobad73 is offline
Member
hurtsobad73's Avatar
 
Join Date: Jan 2007
Location: NC
Posts: 176
15 yr Member
Default ? regarding Lobectomies...

Hi to all...

I was wondering if anyone could give me some information (not medical, but maybe personal) on frontal and/or temporal lobectomies. My dad is in a procedure at this moment of figuring out where his seizures are coming. He had the sensors put in his brain on Wednesday and they are planning on leaving them there for 10 days. However, he is having approximately 20 seizures per 36 hours, so they are not sure that they will keep them in that long.

But my question is, does anyone have any experience with frontal or temporal lobectomy? How dangerous is this surgery? I have read upon this as much as possible, and am worried sick. Maybe I shouldn't read so much. I read the statistics, but they don't mean much to me. My dad has had seizures for 20 years. He has a lot of memory loss. Both long term and short term. I know that he won't get that back. But has it decreased and/or stopped your seizures? How is your short term memory after the lobectomy? Better, worse or the same?

Another reason for me asking this, is due to the fact that I too have seizures. Mine are NO WHERE near what my fathers are like. However his started at age 36, mine at age 31. My neuro, however, thinks mine are NES. But he has never done any test to confirm this. I have had two other neuro's who dx them as psychosomatic and he is basing his dx on theirs. He however sent me to a migraine specialist who referred me to Duke Epilepsy Clinic. I have an appt. there on May 1 unless I work through their cancellation list and one opens up quicker. I am keeping a chart that one of the members here was kind enough to give me so that I can show them what happens before and after my seizures. Hopefully, with my dads medical history, my preparedness and my medical history we can figure things out. I don't think I will ever have to have a lobectomy, but I don't ever won't to be naive either.

Please any help any one can give would be greatly appreciated.

M
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