So, Im still not doing well. Ended up with more rounds of pred plus another three medrol IVs and just started my third week of Imuran. So far, only my eye lids have improved. I can barely walk with walker or cane, only my thumbs and index fingers are working on my hands and I feel so short of breath. It really bothers me when the mestinon wears off. My ribs even hurt. But here's my question:
I had to go today for my bloodwork and I asked the nurse to check my pulse ox. I thought maybe I could get some oxygen for the house that would help when its bad, but the lowest it got was 94. It still doesnt make sense to me. Even though, I remember the Neuro telling me in the hospital that it would read normal because the problem is actually my muscles not wanting to move....but still....it feels like I need air! Would oxygen help?