My parents have offered to fly me if I can find a doctor that actually knows rsd - I'm finding that every doctor in my area says they do, but when it comes down to it they are not up on treatments and when they see my foot they freak out like they've never seen rsd symptoms before. I just had a scs implanted and my current dr thinks it's caused my rsd to spread to my back and abdomen - and then tells me I need to see a psychologist because it's my fault it spread! Not to mention that he put the battery right at my waistline so everything I wear is right at the incision I'm stuck wearing low riders at the moment . . .

I'm pretty much limited to the west coastish area - but as far out as Utah because I have some family I could stay with in almost every major city there. I'm guessing California would be my best bet, but I'm open to any suggestions for drs in Washington, Oregon, California, Idaho, Nevada, or Utah (or another close state if you know of one).

Thanks!