I am music girl i was diagnosed in 2006 with MS, after a spinal tap i was told i did not have MS.
i was told that i have progressive multifocal myoclonus.has anyone known anyone with progressive multifocal myoclonus?i have been told that it is very rare.
basically it means some of my muscles jerk and it has gotten alot worse.

Later I was told that I have CJD but after 3 months they ruled that out. They said i would have been dead by now.
This illness has affected my concentration, speech, memory, I have chronic muscle spasms, extreme fatigue, my spine twists,arms, legs and neck jerks, i have tremors in my hands.
Several months ago I had an eeg and it said epilepsy of irritative nature; however my eeg in 2005 was normal.
They have put me on keppra which has really helped!
They have also added lamictal i am not so sure about this medication. I think it gives me alot of side effects.
This has been a frustrating illness. i am open to any thoughts you might have.
thank you,
music girl