Hi Music Girl,
At least you've got your music, right? So comforting...
I'm sorry that you face such challenges. It is not easy.
There's tons of info here and lots of caring folks who understand what you're going through.
Here is our link to the Stumble Inn.
http://neurotalk.psychcentral.com/forum17.html
I'm sure they will give you lots of advice and tips.
See ya around...